A Special Child in the Family
When both my sons were diagnosed with cystic fibrosis, I searched and searched for a book to help me. I needed one that would tell me it was all right to feel so bad and help me navigate the problems I already had as well as the ones I knew would come in our now very uncertain future.
I couldn't find that book so eventually I wrote it myself to help all parents of a sick or disabled child. The diagnosis doesn't matter as the problems, worries and fears that it covers are common to everyone in that situation.
This is a book about feelings and how to cope with them, about balancing the needs of everyone in your family and about getting the best help for your child. It also tackles the two issues that are rarely talked about - death and failing to cope.
The ideas in the book are parent-sized ones that anyone can try themselves. They come from my own experiences and from those of the many parents and professionals who helped with my research.
After the original edition went out of print, I have kept the updated version book available in as many ways as I can so that it can continue to help other parents. As a result, you can:
Buy the print book from Amazon . It is also available to order from most other bookshops